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BBE Central

Overcoming Epilepsy

December 09 /2019

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You’ve undoubtedly heard of Epilepsy but are you aware of the daily battle it entails? Epilepsy, the fourth most common neurological disorder, causes disturbances in nerve cell activity in the brain that cause seizures. It affects people of all ages and impacts every part of their lives. Join us this holiday in supporting the Epilepsy Foundation and their efforts to find a cure for this devastating disease.

The Epilepsy foundation’s mission is to “stop seizures and SUDEP, SUDEP stands for Sudden Unexpected Death in Epilepsy. Over 1 in 1000 will lose their life each year from this.The goal to find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies”. Programs included are educational, counseling, referral, and employment assistance services.

A glimpse in the life of an epileptic:

Meet Breanna,

Breanna has dealt with epilepsy and the roller coaster of responsibility that comes with it for quite some time. She has experienced multiple brain surgeries as well as treatments to prevent her seizures from being triggered. Through this experience, she has realized that “Life doesn’t stop because you’ve been diagnosed, it’s tough and it most likely won’t be handled overnight but eventually, you will find the right treatment for you. You’re not alone.”

Meet Addie:

View this post on Instagram

This is Addi Hooker. She loves Lunchables and Junie B. Jones. She’s a big fan of the New Palestine Dragons, IU basketball, and the Dallas Cowboys. She keeps her room clean and hates to wash her hair. She loves getting mail, sending mail, choosing stamps, writing addresses and going to the post office. No seriously. You don’t understand. She like really loves all the parts of our United States Postal Service. She thoroughly enjoys reminding her brother to bring the trash can up on Tuesdays. And when he takes too long, she does it herself. Her favorite things to watch are Just Go With It, Friends, Barbie, and Fantastic Mr. Fox. She will play cards and board games all day if you let her. Manicures & pedicures are a priority. If she has your number she’ll FaceTime you everyday. Her favorite subjects are Social Studies and Technology. After school she unwinds by belting out the Pitch Perfect CD in front of her mirror with microphone in hand. Her favorite restaurants are Harry & Izzy’s and Cafe Patachou. She participates in bowling, softball, and cheerleading. She loves her family, but she loves her cousins the most. She wants to be a teacher and work at the farmers market when she grows up. There are a million things that make Addi who she is. Epilepsy is just one of them. #sharemystory #shareyourstory #endepilepsy #epilepsyawareness #epilepsyawarenessmonth #epilepsyresearch #epilepsy #seizures #purple #november #walkinmyshoes #fundacure #findacure #cureepilepsy #caregiver #mom #family #love #bilateralbandheterotopia #pov #advocatelikeamother #theaddimachine @epilepsyfdn @cureepilepsy @epilepsysociety @indianaepilepsy #EndEpilepsyLive #1in26

A post shared by Jess Hooker (@jesshooker_) on

Addi has refractory epilepsy–an unmanageable / drug-resistant form of the disease. In order to help Addi reduce the possibility of seizing she needs sleep. Sleep deprivation is the one sure-fire way to bring on seizure activity. Although she can have plenty of rest and still have seizures, she sleeps about ten hours a night and often takes naps in the afternoon. Regardless of her battle, Addi still thrives.

Meet Channing,

Channing is an incredible horse rider that has looked past her diagnosis and continued to do what she loved.“When I was first diagnosed with epilepsy they told me to give up riding and collect stamps… Like that’s going to happen, let’s end the stigma.” Through horse riding, she has found a family and a support system that has helped her maintain her head up high regardless of the obstacles that lie ahead. Channing helped science gallop toward a cure for epilepsy with the wonderful, creative event, Dressage for a Cause! Raising $5,000 in search of a cure. WOW!

Epilepsy Stats

65 MILLION: Number of people around the world who have epilepsy. –3.4 MILLION: Number of people in the United States who have epilepsy. –470,000: Number of children in the United States who have epilepsy. –1 IN 26 people in the United States will develop epilepsy at some point in their lifetime. –BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.  –150,000: Number of new cases of epilepsy in the United States each year –ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them. –6 OUT OF 10: Number of people with epilepsy where the cause is unknown.

How you can help?

In an effort to continue the search for a cure,we’ll donate 20% of profits to epilepsy research + give you a free facial scrub when you spend $60 or more.
Use the code: 4Epilepsy

Spend $60, We'll Donate 20% of profits and give you a free Facial Scrub

We hope that these stories have shed a light on the reality of what epilepsy is and how you can contribute to finding a cure.

Love,

Kim

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